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What is Hospice Care?

What is Hospice Care?

Reviewed By: Scott Ginsberg

Cross Checked By: Joshua Siegel

Hospice care is comfort-focused care for a person with a terminal illness who is expected to live six months or less, provided once treatment aimed at curing the illness has stopped. It treats pain and symptoms rather than the disease, and it supports the family as well as the patient. Most hospice care is delivered at home, and for people with Medicare it is almost entirely paid for.

This guide covers what hospice provides, who qualifies, where care is delivered, what it costs, and how hospice differs from palliative care.

What Is Hospice Care?

Hospice is a model of care, not a place. It begins when curative treatment stops and the goal shifts to comfort, dignity and quality of life for whatever time remains.

Three things distinguish it from other kinds of medical care:

  • The goal is comfort, not cure. Pain and symptom management take priority over treatments intended to extend life.
  • The family is part of the care. Hospice supports the people around the patient, and that support continues after death. Medicare-certified hospices are required to provide bereavement counselling to the family for up to a year afterwards.
  • Care is delivered where the person lives. Most hospice care happens at home rather than in a hospital.

Hospice also makes room for the non-medical part of dying: time to settle affairs, repair or complete relationships, and think about legacy. Chaplains, social workers and counsellors are part of the standard team for that reason.

Who Qualifies For Hospice Care?

Hospice is open to anyone of any age, sex, race, ethnicity, religion or diagnosis. What determines eligibility is prognosis, not identity.

To qualify for the Medicare hospice benefit, two physicians, usually the hospice medical director and the patient's own doctor, must certify that the person has a terminal illness with a life expectancy of six months or less if the illness runs its normal course. The patient must also choose hospice care in place of Medicare-covered treatment aimed at curing the illness.

Living longer than six months does not end the benefit. Coverage runs in benefit periods (two initial 90-day periods, then an unlimited number of 60-day periods), and a physician recertifies eligibility at the start of each one. Patients can also leave hospice at any time, for any reason, including to resume curative treatment, and can return later if they become eligible again.

Conditions that commonly lead to hospice referral include advanced cancer, advanced heart disease, advanced lung disease, late-stage dementia including Alzheimer's, ALS, end-stage kidney or liver disease, and advanced HIV/AIDS.

Beyond diagnosis, clinicians look at functional decline: spending most of the day in bed or a chair, repeated hospital admissions or emergency visits in a short period, significant unintentional weight loss, breathlessness at rest, and symptoms that are no longer manageable at home.

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What Does Hospice Provide?

Under the Medicare hospice benefit, a hospice must provide everything related to the terminal illness. In practice that means:

  • Doctor and nursing services, with a nurse on call 24 hours a day, 7 days a week
  • Medications for pain and symptom control
  • Medical equipment such as a hospital bed, wheelchair or oxygen concentrator, and medical supplies
  • Hospice aide and homemaker services
  • Physical, occupational and speech therapy where it helps with comfort or function
  • Dietary counselling
  • Social work services
  • Spiritual and religious counselling
  • Grief and bereavement counselling for the patient and the family
  • Short-term inpatient care and short-term respite care
  • Trained volunteer support: visits, errands, help around the house, and time so the family caregiver can step away

The four levels of hospice care

Medicare pays for hospice at four distinct levels, and a patient moves between them as their needs change. Knowing the names is genuinely useful, because they are what a hospice team will use when discussing a change in care:

  • Routine home care. The standard level, and where most hospice days are spent. The team visits on a schedule at the patient's home.
  • Continuous home care. Mainly nursing care, provided at home for extended hours during a short crisis, to manage acute symptoms without moving the patient to a hospital.
  • General inpatient care. Short-term care in an inpatient facility for pain or symptoms that cannot be controlled in any other setting.
  • Inpatient respite care. Up to five consecutive days in a Medicare-approved facility so the family caregiver can rest. Respite can be used more than once.

Care is organised around a written plan agreed with the patient and family, reviewed and revised as the illness progresses. The patient and family remain in charge of medical decisions throughout, and are free to keep their own physician, clergy and outside support alongside the hospice team.

One point families often miss: a spouse or relative usually serves as the primary caregiver day to day. Hospice supplements that care and trains the caregiver. It does not generally replace round-the-clock hands-on care at home. It is worth asking a prospective hospice directly how many hours of in-person support to expect in a typical week.

Where Is Hospice Care Delivered?

Wherever the patient lives. In practice that means one of four settings:

  • A private home. The most common setting. Beds, equipment, medication and staff are all brought in.
  • A nursing home or assisted living facility. The patient receives care from both the facility and the hospice. Check how the two organisations divide responsibilities, and what the facility charges separately for room and board.
  • A dedicated hospice facility. Free-standing inpatient units, typically with private rooms, communal spaces and open visiting hours, for patients who cannot be cared for at home.
  • A hospital. Usually for general inpatient care during a period of uncontrolled symptoms.

What Does Hospice Care Cost?

For most people in the United States, very little. Medicare Part A covers the hospice benefit in full for services related to the terminal illness, and Medicaid and most private insurers offer comparable coverage.

Under Medicare's hospice coverage there are only two routine out-of-pocket charges:

  • Up to $5 per prescription for drugs for pain and symptom management
  • 5% of the Medicare-approved amount for inpatient respite care, capped at the inpatient hospital deductible

What Medicare does not cover is the part that surprises families: room and board. If the patient lives in a nursing home or assisted living facility, or stays in a hospice inpatient facility other than for covered short-term inpatient or respite care, the accommodation cost is not part of the hospice benefit. Treatment intended to cure the terminal illness, and care from a provider the hospice did not arrange, are also excluded.

If cost is a concern, ask the hospice about charity care. Many non-profit hospices subsidise patients who are uninsured or underinsured.

Hospice covers the medical side of dying. It does not cover the funeral, and the two sets of decisions often land on a family within days of each other. Titan Concierge offers free funeral planning support so those arrangements can be made calmly and in advance rather than in the first shocked week.

How To Choose A Hospice Provider

Most communities have several hospices, and they are not interchangeable. Quality varies, and the differences are worth investigating.

First, a correction to a claim that circulates widely: hospice is not a lightly regulated field. Any hospice that bills Medicare must comply with the federal Hospice Conditions of Participation at 42 CFR Part 418, which are legally binding requirements covering patient rights, the interdisciplinary team, care planning, medical director qualifications and quality assessment. Medicare-certified hospices are surveyed on those standards. Most states additionally require a licence.

Voluntary accreditation sits on top of that. The Joint Commission, the Community Health Accreditation Partner (CHAP) and the Accreditation Commission for Health Care all run hospice accreditation programmes, and the National Hospice and Palliative Care Organization publishes its Standards of Practice for Hospice Programs.

Questions worth asking any hospice you are considering:

  • Are you Medicare-certified, and when were you last surveyed? What was found, and what did you change?
  • Are you accredited, and by whom?
  • How many in-person visit hours should we expect in a typical week, and from whom?
  • What is the nurse-to-patient ratio, and who responds at 2am, an answering service or a nurse who can come out?
  • Can you admit at night, at weekends and on holidays?
  • Do you provide continuous home care and general inpatient care directly, or contract them out?
  • Can we see your most recent family satisfaction survey results?
  • Are you non-profit or for-profit, and how long have you operated here?

The single most useful question is the second-to-last one. Hospices survey bereaved families as a matter of routine, and a provider confident in its results will share them.

When Should Hospice Care Be Considered?

Earlier than most families do. A great many patients enter hospice only in their final days, and both research and hospice clinicians consistently find that late referral means families get little of the benefit available to them.

Raising it early is not the same as giving up. Because the certification requires a six-month prognosis, the conversation has to happen before the final weeks if there is to be any meaningful period of care. Discussing it in advance also lets the patient take part in decisions about their own end-of-life plan while they are still able to.

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Hospice Care For Veterans

Veterans are eligible for hospice through the VA as well as through Medicare, and VA hospice care is provided with no copayment. Veterans with service-connected conditions may also qualify for additional support.

We Honor Veterans, a programme run by the National Hospice and Palliative Care Organization in partnership with the Department of Veterans Affairs, trains hospice staff to recognise the specific needs of dying veterans, including combat-related trauma that can resurface at the end of life. Hospices participating in the programme are recognised at levels, and you can ask a local hospice what level it holds.

Hospice Care vs Palliative Care

The two are often confused. All hospice care is palliative, but not all palliative care is hospice.

Palliative care Hospice care
When Any stage of a serious illness, from diagnosis onwards Terminal illness, prognosis of six months or less
Curative treatment Can continue alongside: chemotherapy, dialysis, surgery Stopped for the terminal illness
Prognosis needed None Physician certification required
Where Usually hospital or clinic-based Wherever the patient lives
Family support Available Built in, including bereavement care after death
Coverage Billed as regular medical care, normal cost-sharing Distinct Medicare benefit, minimal cost-sharing

People often move from palliative care into hospice as an illness progresses. Asking for a palliative care referral early does not commit anyone to hospice later.

A Short History Of Hospice

"Hospice" shares a Latin root with "hospitality", and for centuries hospices were shelters for travellers and pilgrims rather than places for the dying.

The modern movement traces to Dame Cicely Saunders (1918 to 2005), who trained first as a nurse, then as a medical social worker, then qualified as a physician in 1957 specifically so that her ideas about the care of the dying would be taken seriously. She founded St Christopher's Hospice in London in 1967, the first to combine expert pain control with teaching and research.

Saunders lectured at Yale in 1963 at the invitation of Florence Wald, then dean of the Yale School of Nursing. Wald went on to found Connecticut Hospice in 1974, the first hospice in the United States. Congress created the Medicare hospice benefit in 1982.

Hospice Care: Common Questions

What does hospice do?

Hospice manages pain and symptoms for someone with a terminal illness, supplies medication and equipment, and supports the family. It provides nursing, physician, aide, social work, spiritual and bereavement services, with a nurse on call around the clock. It does not treat the underlying illness.

How long can someone stay in hospice?

There is no limit. Eligibility requires a prognosis of six months or less, but coverage continues in renewable benefit periods for as long as a physician recertifies that the prognosis still applies.

Does hospice mean giving up?

No. It means changing the goal from curing the illness to controlling symptoms and protecting quality of life. Patients can leave hospice to resume curative treatment at any time and re-enrol later.

Does hospice care cost anything?

For people with Medicare, very little. The only routine charges are up to $5 per prescription for symptom-management drugs and 5% of the approved amount for inpatient respite care. Room and board in a nursing home or assisted living facility is not covered.

Is hospice care available 24/7?

A Medicare-certified hospice must have a nurse available by phone 24 hours a day and be able to send someone out when needed. That is not the same as a caregiver being present around the clock, which routine home care does not include. Ask each hospice exactly what its overnight response looks like.

Can a patient stay at home for hospice care?

Yes, and most do. Equipment, medication and staff are brought to the home. A family member usually acts as primary caregiver, with the hospice team supporting and training them.

What is the difference between hospice and palliative care?

Palliative care can be given at any stage of a serious illness and alongside curative treatment. Hospice requires a physician-certified prognosis of six months or less and replaces curative treatment for that illness.

Who decides that it is time for hospice?

The patient, in consultation with their physicians and family. A doctor must certify eligibility, but electing hospice is the patient's decision, and it can be reversed.

This article is general information about how hospice care works in the United States, not medical advice. Decisions about hospice should be made with the patient's own physicians. Sources used: Medicare hospice coverage, the Medicare Hospice Conditions of Participation, 42 CFR Part 418, and the National Hospice and Palliative Care Organization. Last reviewed 24 August 2026.